changes by the hour with her. And then it was
days. ‘You’ll see even more progression.’ She did
everything she was supposed to do in the healing
process,” Brittany says. “We kind of treat November
10th as a second birthday with her, and we do
cake with our family and celebrate her.”
Eventually, she healed completely, a success
story and another of two parents who weren’t
resigned to take no for an answer.
The family eventually moved back to Louisville,
and Remi became a big sister to her two-year-old
brother, Monroe. As another way to celebrate
Remi’s accomplishments as a now spunky,
princess-obsessed four-year-old, the family
became involved with the Kentuckiana Heart
Walk, this year scheduled for Sept. 21 at 8 a.m.
at Waterfront Park’s Great Lawn.
“We again use that as something for our family
to be able to do with Remi,” Brittany says. “We’re
‘Team Remi’ and we are part of the community
teams with the Kentuckiana Heart Walk.”
Remi’s story touched walk organizers so much
that they chose her as one of three representatives
for the event. That means Remi’s dream of being a
princess came true, with a tiara and red cape – and
red Converse shoes all designed to represent what
she, and others with heart issues, have endured.
“Remi was chosen as a member of our 2019
Royal Court because of her amazing story of
survival,” says Mary Fowler, walk director for the
American Heart Association. “She is an inspiration
and we love that her family now celebrates her
Heart Day and her healthy heart each year at the
Heart Walk. Even at four years old, Remi’s zest for
life is contagious! As a Royal Court member, she
will represent pediatric heart patients and share
her story with our thousands of participants at the
Kentuckiana Heart Walk and surrounding events.”
Brittany hopes to bring awareness to pediatric
heart issues –– but few can do it better than a
blonde little girl in a cape and tiara. Remi will
be a part of the opening ceremonies for the walk.
“Heart-related issues don’t only happen to
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